October 18, 2021

On Mondays I see my radiation oncologist after my radiation treatment. He asks how I think radiation is going and check for any side effects. Usually he does a visual check of my skin for reactions. Today I told him I thought it was going fine; I said I had a rash but it wasn’t bothering me too much and my skin was red but not too awful. He said my skin would get redder. Well, dang.

I asked if he thought my incision was looking ok since it’s now getting a bit stretched as my skin is tightening. He said it wasn’t worrying him at this point. Then he proceeded to tell me about a prior patient whose skin tightened so much around her implant spacers that her skin started breaking down and the metal piece started coming coming through. Apparently when radiation hits metal, it reflects so it’s like double radiation. I should have put up my hand and said, “nope, stop right there,” when he started by saying he probably shouldn’t tell me this. UGH. Now I’m going to struggle not to worry about my freaking implant spacers. My only saving grace is that apparently hers had been filled too much prior to treatment, and I remember my plastic surgeon saying he was purposely not filling mine more than he did so they wouldn’t pull too much during treatment. I am praying mine is fine, but seriously, I’m going to have to scrub my mind of that visual or I’ll worry too much.

Despite my doctor’s penchant to be blunt and overshare, I appreciate that going to treatment every day hasn’t been awful. Because I see the same staff all the time, they like to chat and share what they’ve done on the weekend and stuff. It makes it easy and I’m thankful for that.

October 5, 2021

Radiation normally happens like this:

I lay on the table with my left arm up and my head tilted right and the techs line my tattoos up to red and green light markers that shine down from the ceiling. The table I lay on moves up and down and front to back. If I’m off from side to side, then they slowly pull the sheet under me while reminding me not to help. Everything is adjusted in millimeters. Once I’m lined up, I have to take a deep breath in and hold it so they can take a computer snapshot for reference. Then they leave the room. The machine arm above me moves slightly to the right and I can hear and see the screen adjusting for the beam. Soon I can hear the nurse telling me to take a deep breath and hold it, and the machine turns on. There is no light, only sound and it lasts 20-25 seconds. When the sound stops, I know I can breathe again before they tell me I can.

Then the techs come back in because they need to put a towel and “bolus” on me, which is a sheet of rubbery material that is supposed to make up for my lost breast tissue. We have to do another deep breath snapshot and sometimes tape the bolus down to make sure it doesn’t slip. If all looks well, then they leave and the machine rotates further to the right. We do two deep breath holds in this position, each shorter than the initial one. The sound changes on these. The first is higher pitched than the second. When they’re done, the machine moves over me and around way to the left. If the bolus has moved, the techs come back in and we do another adjustment. If the bolus hasn’t moved with my breathing, we do one more round here and we’re done. By this time, my arm aches and my hand is numb because through it all, I can’t move. Once, without thinking, I crossed my feet in between rounds and they had to completely readjust me.

Today, as we finished the second one on the right, the machine didn’t move. I lay still, waiting. And waiting. Finally, a tech comes in and says the sensor is acting up and she needs to move it manually. It moves in spurts. Finally, it’s in position and she leaves. We continue. I take a deep breath and hold but there is no sound. Soon they tell me I can breathe but not move. I wait. Eventually, they come back in and say the machine still isn’t working correctly and they called someone in to look at it. They ask my doctor about adding the last round to tomorrow’s treatment while the machine is being checked.

Ultimately, I’m given the option to wait for the machine to reboot or have one more round tomorrow. At that point, I said it didn’t matter, so we wait the 11 minutes for a reboot. The manager comes in to apologize and explain what’s going on. We make small talk and after another readjustment, we are ready to go. Only we don’t.

After all that, the machine wasn’t fixed, so I have to have an extra round tomorrow. I’m assuming the machine will be fixed overnight. I’m not loving the idea that my health is dependent upon this fallible machinery, but here we are. The curtain has been pulled back. Now I know it’s not magic. But you know what I’m thankful for? The device is so precise that it won’t work if it’s not right. That my techs are not only skilled, but legitimately nice. That we were almost done, so I can make it up tomorrow without issue. Fingers crossed this was the only blip I’ll have going forward.

October 4, 2021

Today my doctor gave me this because apparently getting radiation along my collarbone can create a sore throat and the sensation of a lump in the throat. If you’ve followed my blog for very long, you’ll know how not pleased I am about this. Not pleased at all. If you’ve just stumbled upon this post, then know that I am someone who can choke on her own spit. So I don’t like weird throat sensations. That being said, I’m thankful that my doctor said my throat won’t close up or anything. That’s something to hold onto.

However, I’ve decided I’m not going to worry about it. At this point I’m just going to add it to the list of crazy side effects I’ve already dealt with and lived through. And hopefully drinking this bottle of aloe vera water means I’ll barely notice it. If nothing else, it adds to my list of hydrating beverages, right?

September 22, 2021

Well, I was right about my wrist problem. It is De Quervain’s. But I was wrong about the solution. Since it wasn’t getting better, I called my doctor who referred me to an orthopedic clinic where I went this morning. The hand and wrist specialist said that at the stage my wrist was, the splint would no longer work. He did a cortisone shot instead. All I can say is, Ouch.

The upside is that after a couple of days, the shot usually is 90% effective at relieving the symptoms and 50% effective at curing the problem. If it doesn’t cure it, the next step is surgery, so I’m really hoping for a cure. In the meantime, I’ll be thankful for pain relief.

I’m also thankful to have my first radiation appointment done. It was a little longer than it should normally be since they did a little tweaking again. Apparently I hold my breath too deeply. Go figure. At least I won’t need to worry about not being able to hold it long enough. It was fine. Plus they had to draw the radiation parameters on my skin for pictures. I never realized how often Sharpies are used in the medical field. Another go figure. One nice thing about it is that I can see where I need to apply lotion. And it’s way further under my arm than I anticipated.

So, here’s to another day of being poked and prodded but in the right direction. The countdown to Nov 4, my last treatment day, begins!

September 21, 2021

I got a call from my radiation oncologist’s office today with a last minute request to come in for X-rays this afternoon. It was the last step needed before radiation starts tomorrow. I’m scheduled from now through November 4th.

The X-rays were done in the treatment room, so I was able to get an idea of what my treatments will be like. The ceiling is designed to looks like a glass ceiling with the sky and tree branches visible. Music was playing. It was really nice. The techs and I jokes that we just needed someone to deliver margaritas.

I’m thankful I got radiation scheduled. I’m also thankful I got a glimpse of what my daily visits will look like. I think I’m ready. I have skin lotions, protein shakes, and intend to hydrate, hydrate, hydrate (my plastic surgeon’s suggestion).

September 16, 2021

I had my radiation planning session today. It involved a lot of laying down and being still. Not my best posture.

The hardest part of the hour and a half was keeping my arm raised. Even though I had it in an arm rest like in the picture below, my hand still fell asleep and my tight chest muscles burned.

Breast board image I found on Healthline.com.

Part of the process was getting CT scans while in this position that will be used by the radiation team to plan my upcoming procedures. A few times I needed to hold my breath, which will be part of my sessions. Holding my breath will help minimize the radiation effects to my heart as much as possible.

The final part for today was tattooing small black marks on my chest that will be used to position me in the same spot every session. That hurt more than I expected it to. I’m not sure how I feel about having permanent black spots on my chest, but it’s better than permanent cancer. So there’s that.

I’m thankful that things went well today, and I’m hopeful that I can start radiation next week.

August 24, 2021

Today I saw my oncologist and radiation oncologist, so I have some next steps in place. The cliff note version for today’s gratitude is no more chemo. Yay! My oncologist says he hopes I never need it again.

That being said, I am considered high risk for a reoccurrence due to my initial type/size of cancer and that the pathology from my surgery showed that cancer cells were most likely left behind. That means at least six weeks of radiation that will target not just my left breast but the adjacent lymph node regions of my underarm and neck. The doctor wants to make sure they reach “deep” so as not to miss any areas of my chest wall. Fun. Once radiation is done, I’ll start hormone therapy that will last for 10 years. This piece, my oncologist emphasized, was absolutely necessary in the fight against reoccurrence. Once all my treatments are done, I’ll start follow-up visits every three months for two years and then every 6 months for three years. Good thing I like my doctor.

I’m hoping my visits tomorrow with my surgeons end with me getting my bandages and drains removed. I mean, I’m really hoping. Full disclosure: I was told I couldn’t get them wet which means no showering. I’ve been sponge bathing for the last two weeks, and I’m at the point of dreaming about a bath. Our neighbor has a fountain going 24/7 in their pool and I feel like it’s taunting me. I sometimes just stare longingly at our shower.

Besides the need for a dunk under running water, I’m also hoping bandages/drains are removed because they really are getting annoying. And painful. The radiation oncologist pointed out that the visible ridge I see is the metal section of my implants that are used for filling with saline. The binding is so tight that the skin along there has become extra sensitive so that even my clothes rubbing against it hurts.

The lower edge of the bandages are also coming loose and beginning to uncover the drain insertions. I put bandaids along the edge to try to stop it, but they aren’t holding up either. As the drains move more, they’re also starting to ache more, to say nothing about how gross they’ve become. (Sorry if you’re reading this while eating.) At the very least, I need a bandage change. Sponge baths only go so far when you’re wrapped in plastic during 90 degree weather.

At any rate, fingers crossed that tomorrow’s my lucky day. I’ll be extra, extra thankful. For today, I’m grateful to have some next steps laid out that don’t involve more chemo. In the words of my doctor today, radiation should be the easiest of all my treatment steps, so I’ve been through the worst.