August 25, 2021

Yay!! My plastic surgeon took out my drains today!

I will say that getting them removed was really something. I had two on each side, so two nurses worked together to take them out at once. After they clipped the sutures, they grabbed both and pulled in one long motion. All four at once. Patrick was watching and said each one was at least 12-18” long, and I could feel every twist as they came out. It burned but wasn’t really painful, thank goodness. Just weirdly uncomfortable.

While they took off the binding on one side, the P. Surgeon wanted to leave the other side intact for another week. Even so, he gave me the ok to shower again. BEST. DAY. EVER. Well, ok, best in a couple weeks. And I showered as soon as possible once we got back home. Because I could.

I saw my plastic surgeon in the afternoon, but I had an appointment with my general surgeon in the morning. He explained how his portion of the surgery went, giving us an anatomy lesson in the process. Did you know breast tissue typically extends up to the second rib and has to be peeled off of the chest muscle during a mastectomy? And that there is a visible difference between tissue and muscle? The upside to knowing this is that the area that showed positive margins for cancer was where the tissue and muscle met. That means my tumor was right to the edge of my breast tissue, and according to my surgeon, it wasn’t like the tissue extended into the muscle.

Now, since so much of this cancer stuff gets overwhelming and confusing and scary, I like to ask a lot of questions during my visits, sometimes repetitively, and without fear of sounding stupid. Yesterday I asked my oncologist if the only way cancer could spread is through the lymph nodes. He said yes. And then through the blood. He assured me that my breast cancer could not just move directly from my breast tissue into my muscles.

My takeaway is that there is a good chance my surgeon really did get all of the cancer, and any microscopic cells left behind should be eradicated by the upcoming radiation. I’m thankful for that. I’m also thankful that both my surgeons had the same reaction to how my healing is progressing —an almost surprised happiness. I think it’s because there was worry about adequate blood flow to one side. It was deep purple after surgery but today it’s almost bruise-free. Their reactions and explanations helped ease my mind about how things are going.

Today it’s going pretty good.

August 24, 2021

Today I saw my oncologist and radiation oncologist, so I have some next steps in place. The cliff note version for today’s gratitude is no more chemo. Yay! My oncologist says he hopes I never need it again.

That being said, I am considered high risk for a reoccurrence due to my initial type/size of cancer and that the pathology from my surgery showed that cancer cells were most likely left behind. That means at least six weeks of radiation that will target not just my left breast but the adjacent lymph node regions of my underarm and neck. The doctor wants to make sure they reach “deep” so as not to miss any areas of my chest wall. Fun. Once radiation is done, I’ll start hormone therapy that will last for 10 years. This piece, my oncologist emphasized, was absolutely necessary in the fight against reoccurrence. Once all my treatments are done, I’ll start follow-up visits every three months for two years and then every 6 months for three years. Good thing I like my doctor.

I’m hoping my visits tomorrow with my surgeons end with me getting my bandages and drains removed. I mean, I’m really hoping. Full disclosure: I was told I couldn’t get them wet which means no showering. I’ve been sponge bathing for the last two weeks, and I’m at the point of dreaming about a bath. Our neighbor has a fountain going 24/7 in their pool and I feel like it’s taunting me. I sometimes just stare longingly at our shower.

Besides the need for a dunk under running water, I’m also hoping bandages/drains are removed because they really are getting annoying. And painful. The radiation oncologist pointed out that the visible ridge I see is the metal section of my implants that are used for filling with saline. The binding is so tight that the skin along there has become extra sensitive so that even my clothes rubbing against it hurts.

The lower edge of the bandages are also coming loose and beginning to uncover the drain insertions. I put bandaids along the edge to try to stop it, but they aren’t holding up either. As the drains move more, they’re also starting to ache more, to say nothing about how gross they’ve become. (Sorry if you’re reading this while eating.) At the very least, I need a bandage change. Sponge baths only go so far when you’re wrapped in plastic during 90 degree weather.

At any rate, fingers crossed that tomorrow’s my lucky day. I’ll be extra, extra thankful. For today, I’m grateful to have some next steps laid out that don’t involve more chemo. In the words of my doctor today, radiation should be the easiest of all my treatment steps, so I’ve been through the worst.

August 23, 2021

Today I had more energy than I’ve had since surgery, which was a happy surprise. I was able to hang out in my craft room and get a few things put away that I hadn’t gotten back to in the last couple of weeks. I looked through some of my craft books and imagined some Halloween decorations I’d like to make. I hope my healing speeds up.

Speaking of the healing, I’ve started the suggested post-mastectomy exercises and feel like I’m getting more range of arm movement every day. It’s amazing how difficult moving my arms straight up has become. The stretch is real! But I’m going to continue so I can start feeling back to normal as quickly as possible.

I’m thankful for my bout of energy and for my continued healing. I’m also thankful for the help Patrick has been to me since my mom left. He’s made sure I’ve gotten my meds in time, helped me wash my hair and get dressed, opened doors and tucked me into the recliner at night. He’s been a trooper, but I’m sure he’s just as anxious as I am to get me back to normal.

August 21, 2021

Today I felt better, both physically and emotionally. I don’t like to feel sorry for myself too long. And I had a dear friend stop by with a gift bag themed to make me laugh, and it’s hard to stay sad when you’re laughing. I just love the silliness of this.

Only a good friend would know when a bathroom-themed gift was necessary. It helped and I’m thankful.

August 20, 2021

Last night I started feeling tired of my drains, tired of the heaviness in my chest, tired of sleeping in the recliner. Today I think it’s the emotional toll of this surgery that has been weighing on me. I feel broken in a way I haven’t up until now.

I knew having a bi-lateral mastectomy would be hard. Since the binding the surgeon put on during my surgery is clear, I’ve seen the bruising and swelling, although the dressings hide my incisions. It was startling at first, but not unexpected, and every day it looks a little better. I’m not sure why the sadness has hit me at this point. Maybe it’s that I’ve spent the last couple of weeks mostly sitting around, and the inactivity makes me feel like an invalid. Maybe it’s these stupid drains that I’ve been carrying around in a fanny pack in front of me that I’m constantly aware of. Maybe it’s that my mom (bless her!) has spent all day cleaning my house for us while I’ve sat outside, out of her way.

Or maybe it’s that I haven’t quite accepted the changes that I knew were inevitable. I wish it were quicker. Off with the old, on with the new. But it can’t work that way. It’s coming in stages and requires healing time. As I type this I realize that really is the crux of it for me. I want to be finished, so I can really move on. I don’t like the unknowns that still linger.

The pathology from my surgery showed positive margins which means some cancer cells may have been left behind. If we weren’t going to do radiation already, we would be now. I was told there’s also a chance my oncologist could suggest more chemo. I hope not. Next week I see him as well as the radiation oncologist. I also see both surgeons again. By Wednesday, I’ll know the next steps.

Still, I’m thankful today that I’m on the mend. That I had such great help from my mom and sister the last couple of weeks. That I’ll have answers early next week. And I’m grateful that my days feeling broken are few and quickly over.

August 18, 2021

It’s been 7 days since my surgery, and I’m moving around much better each day. However, any extra stretch in the wrong direction can send shooting pain through my chest. And after a while, it feels like I have something pressed against my ribcage, especially at night. It’s odd and uncomfortable and makes me wish my recovery would speed up. Then I remind myself that it’s only been a week.

I’m thankful my mom has stayed this week to help out. Even though I’m getting around better on my own, I’ve been instructed not to do any push/pull motions or any repetitive arm motions. Or lift anything too heavy. So I still need help opening doors and carrying stuff and washing my hair. And while I feel rather useless around the house, I’m grateful my mom has been making up for it. Today she started re-organizing our garage. (Apparently, we have gotten lazy about putting stuff away neatly.) It does feel good to see the closets and garage tidy. I may never let her go home.

August 17, 2021

I’m still enjoying the flowers that were delivered to me last week. I love that they’re lasting so long. I’m thankful for that. I’m also thankful today for a quick visit from my friend, Ann. The weather was perfect for a chat on the deck, sunny but with a slightly cool breeze.