January 20, 2021

Today was the day. I shaved my head. Or more accurately, Patrick shaved my head. I’ve actually been losing my hair over the last several days, but I refused to shave it prior to my second chemo treatment. I was told it was after the second one that I would most likely lose it, so I was disappointed when I noticed it earlier. I was keeping it through the second treatment out of principle.

First off let me say that losing your hair is difficult to describe. It’s weird. I thought I was prepared but I’m not sure anyone really is. Running my fingers through my hair resulted in a fistful of strands. Eventually, I’d notice hair hanging lower than others and if I tugged on it, it would pull out in clumps.

And brushing?! Holy cow. I could make small animals with what came out. This was from one gentle brushing yesterday.

Yikes!

Today I couldn’t wait any longer. I felt like PigPen and his dust cloud only mine was a cloud of fallen hair everywhere. On my clothes, on my desk, in every plate of food. It was time to get rid of it.

Am I ready?

I turned on All American Girl by Melissa Etheridge which felt fitting for the moment as well as the day and Patrick got started. This is another thing I can honestly say I never expected to be doing, but here we are.

I actually thought it would be funny to let it fall out naturally just to send funny progression photos to my family. If you met my family, you’ll understand. We all enjoy a good laugh, especially at each other’s expense. Which may sound mean, but my family is also fiercely protective of each other when necessary, so it’s a good balance. If my scalp didn’t hurt from the hair pulling, the slow fallout may have happened. The photo album would have been epic too because I’m pretty sure one side was losing it faster than the other. I already had one bald spot on the top.

Who wore it better?!

To stand in solidarity, Patrick asked me to shave his head too. It was such a sweet gesture, and I can’t even adequately express how much it means to me. I’m blessed to have him on my side. Losing my hair isn’t easy, but I’m thankful today to have this milestone over. It’s just hair and it will grow back one day. In the meantime, I get to play with wigs and hats and scarves. Fun!

January 5, 2021

You guys! I wish I felt like celebrating. I am happy to report that today is day one of my cancer cure.

I had my first chemo treatment. I’m not going to lie; I was nervous. After almost two hours of blood draws and port flushes and anti-nauseous drips that took over half an hour to administer, my nurse, Sister Rose, came back into my room in a special blue gown. She donned not one, but two layers of gloves, and then proceeded to handle the chemo drugs that had been specially made for me when I arrived. The first ones were red vials. She said she had to manually push them into my port IV because she needed to periodically check the blood draw. This stuff is what is sometimes referred to as the red devil. I told her it looked like jello shots. While she laughed, I suspect she said an extra prayer for me today. After two vials of the stuff, I got another IV bag drip of a different kind of chemo. Both have similar side effects: nausea is top of the list, hence all the extra drugs; low blood counts, so I’ll go in tomorrow for a booster shot to help produce white blood cells; fatigue (already feeling it!); cardiac damage, which is why I had a heart test prior; and hair loss (my crowning glory!). There are of course a myriad of other things, like skin rashes and mouth sores and extremity numbness/tingling, that may come along.

Me in the home stretch. I was so glad not to have to wear that mask the entire time!

But honestly, right now, I’m just thrilled to have made it through. So far so good. I entered a clinical trial for added nausea medication; maybe I got it, maybe I didn’t. Either way, things are working. I’m tired but I’m now 1 down, 15 more to go. And I’ll handle things day by day, grateful for a cure.

January 2, 2021

Photo by Kat Jayne on Pexels.com

When I was about 8 or 9, my family saw both Jaws and Piranha one night at an outdoor theater. I spent the next week or two deathly afraid of the bathtub. Or any puddle of water deeper than an inch. I always had a rather active imagination, and as a child, my imagination regularly worked against me. My dad, who was an engineer, finally sat me down one day and forced me to consider in detail the error of my thinking. How could something as large as a shark make its way through small pipes and into our tub? Staring into the light of logic, I had to admit that it couldn’t.

I’ve always had a comfortable relationship with my body. For a modicum of effort on my part, I expected it to get me through every day as I saw fit. If I wanted to spontaneously dance, I would. If I wanted to run through the snow with the pups, I would. If I wanted to push a piece of furniture from one room into another, I would. But when the call came that the biopsy of my left breast showed cancer, I immediately felt like my body turned against me. I lay in bed at night and inched my arm away from my side. I wanted my turncoat breast to stay away from other parts of me. How dare it defect? I did nothing but support it since it showed up 40 years ago. In some weird way, I felt like I didn’t know myself anymore. Where else was the cancer? Every issue I’ve had in the last 5 years became suspect. Every otherwise normal ache and pain became related. I felt like dead woman walking. It’s then that I heard my dad’s voice from so many years ago telling me, Melissa, you are your own worst enemy.

It’s funny how our minds can control us in such powerful ways. I’ve always loved being imaginative. Being creative brings me joy. However, I’ve been reminded regularly throughout my life that being stuck in my head can work against me. I don’t think I’m alone in that. Focusing too much on a problem doesn’t necessarily solve it. Sometimes it just makes it worse. While I believe that I’m intelligent and resourceful and a problem solver, I also know that sometimes I need to stop listening to my own voice and instead listen to others who can maybe see something differently than I.

I started this blog again as a way for me to look out. To get outside my head and look for the moments in my day that are more worthy of my attention. I asked others to join me in this gratitude journey as a way of sharing what I was going through and maybe helping someone else along the way look for their own moments. I didn’t expect to hear so many, many words of encouragement, support, and strength. Today I’m so very grateful for all of your voices. They helped drown out my own.

November 13

I found out tonight that a good friend of mine was just diagnosed with breast cancer. Cancer. I hate the word. One dictionary entry says it means something evil or malignant that spreads destructively. I think that sums up the disease accurately because it seems to be everywhere. And it’s not just a physical thing; it’s pervasive in all aspects, mentally and emotionally as well. Show of hands on who’s been affected somehow by cancer. I have a hard time finding someone who hasn’t been. In fact, my friend just lost her father-in-law last year to cancer. She lost her mother to cancer. It sucks. I don’t know how else to say it. It’s a horrible thing. When I think of it, it makes me sad and angry at the same time. And helpless. What do you say when someone tells you this? I told her I was sorry. I told her that it sucked. I told her I loved her. And you know what she said? She was going to stay positive; she wanted no sad faces, only happiness and laughter. So there you go. This world is full of battles. We all have one, and it’s really about how you fight it. My friend has cancer. But it doesn’t have her. I’m thankful for that.

Day 23

At the risk of being too personal, I’m going to admit to having a mammogram today. It’s a pretty routine procedure for us women, I know. I think it’s also safe to say that it’s uncomfortable for all and nerve wracking for some. I went into this procedure just a little nervous for a couple of reasons. My doctor was upset to find out that it had been a couple of years since I’d gone and mentioned feeling something strange during my last routine visit. However, the main reason he was upset is that there’s first generation breast cancer in my family. My sister was diagnosed and had a double mastectomy before she was forty.

I’m thankful today for the fact that my visit turned out a normal reading, but mostly that my sister is still cancer free. She was diagnosed in January 2007. Two months after our dad was diagnosed with stomach cancer. Wow that was a tough year. And my sister faced her own cancer with such amazing courage, it’s almost easy to forget she had it. My large family is scattered around the country, and she lived in Kentucky at the time. My oldest sister and I traveled to Kentucky to be with her and help her for a few days after her surgery. When we showed up at the hospital, we had to laugh because she was wearing an Alice in Wonderland Cheshire Cat top with the caption “Poof…gone.” on it. (Our family’s sarcasm knows no bounds.) And after the surgery, when we helped her do the basic functions: get in and out of bed, shower, dress without screwing up the drain tubes and bandages, she didn’t whine or even complain much beyond making comments about the awkwardness or uncomfortableness or general pain of it. Granted, we didn’t stay with her for the duration of her healing, but I can say with certainty that she dealt with her cancer like she deals with all things in her life. Straight on. Head held high. Doing what she needs to do without falling to pieces, like she would have every right to do. Like many of us would do.

I admire my sister’s bravery; words fail when I think of how proud I am of her. As anyone who has been touched by cancer knows, it’s not something that goes away completely. It’s always there, in the back of the mind if no where else. Since her initial diagnosis eight years ago, she has had different follow-up surgeries and routine checks and rechecks. Thankfully, all is still well. She doesn’t talk about it much. She made it through and has continued on beyond it. On a daily basis, it’s easy to forget about until something as mundane as a routine mammogram reminds me. My sister is a cancer survivor and is still a beautiful role model in my life. What a blessing it is to say that.