October 2, 2023

I’m officially eight weeks post surgery, and I went back to work today. I was exhausted and sore when I got home. And running a low grade fever. Maybe I overdid it or maybe I have something going on. Last night the incision on my left breast started weeping. I sent a message to my surgeon’s office and they suggested I don’t use the hot tub anymore for a while. I’ll also need to keep an eye on it for any signs of infection. So frustrating.

So…aside from all that, here is how I’m doing at two months for anyone interested or considering diep flap reconstruction:

My incisions are (mostly) healed but still red. There has been some fat necrosis on the left side of my chest, so there is a section of hard, immovable skin, which sits on my tight tendon. Physical therapy is helping with the tightness and massaging the necrosis section is helping it move a little. The transplanted skin from my stomach is a different color than the skin on my chest, so that’s disarming. My doctor said it may get less noticeable over time.

My stomach still feels tight, but I can stand mostly straight now. There is still swelling which means my stomach has no “give,” and I can’t wear anything that’s too tight. No squeezing myself into jeans. Also, the longer the day goes on, the more swelling seems to happen. Swelly belly is what a lot of women who have gone through this surgery call it. In addition to that, my stomach skin is SUPER sensitive to the texture of fabric. I’m trying to wear normal clothes again but it’s hard. I ordered belly bands and hope they are thin enough that I can wear them under my clothes without adding a lot of bulk or warmth. They have to be better than the abdominal binder I no longer need to wear.

I am able to lay on my side, although I can’t stay there too long before it feels weird. I also was able to lay on my stomach during physical therapy, which I haven’t been able to do in two years. It was glorious. No pain.

I can lift things heavier than 10 pounds now but I still do so carefully, using my knees and all that. I can’t sit up without turning and pushing myself up. Engaging my stomach muscles for anything feels really uncomfortable, although I’m slowly adding some exercises to my stretching routine. Sitting too long makes my stomach feel weird. Twisting feels weird. Notice a pattern? I suspect my stomach is going to feel weird for a while.

I still get random sharp pains or a dull ache in areas where the nerves were cut. It’s tolerable. And my new belly button is still red but looks like my old belly button.

Would I do it again? Yes, assuming nothing goes amiss at this point. Otherwise I’ll probably wish I had taken out the implants and left it. I’m thankful that my reconstructed breasts are soft, and the heaviness of the implants are gone. I’m thankful that even with the tightness I still have, my range of motion is better. And I’m grateful that although I’m scheduled for revision surgery in April to make everything look better, I don’t have to do it. I can change my mind.

August 21, 2023

I’m two weeks post surgery. It feels longer. I’m able to walk around much easier and am starting to bend over a little better. I’m also making it a bit longer in between pain meds – and at half the dosage I was prescribed. The compression garments are a pain to wear 24/7, mostly because they’re scratchy nylon, although it does feel kinda good to have stomach support. The swelling there is still pretty substantial. From everything I’ve researched, that won’t subside for months.

Even though it feels longer than two weeks, I’m consistently reminded that it’s only been two weeks. While I can move around better, I get exhausted quickly. I napped again this afternoon, after my mom and I finished cleaning the garage. And I’ve started getting the sharp pains of healing nerves and muscles. I still have a long way to go.

I’m thankful I’m able to take it easy, and I still have help this week. I’m expecting next week will be easier. And each week after that…

August 17, 2023

I had my follow up appointment this morning with my plastic surgeon, and I got the wound vac from my stomach as well as three of the four drains removed. I have one remaining in my left hip. The doctor is happy with the progress and of my healing. The incisions look good and the transferred skin is looking healthy. My left breast, which was my problem side all along, is feeling firmer already though. He says it could be some fat dying off or some possible bruising underneath, but it isn’t anything too concerning. He does want me to go to physical therapy soon as it might help with the tendon tightness that is still present.

He also confirmed that the pathology report stated there was some potential skin necrosis happening in my left breast prior to surgery. He said it was quite a mess, so I’m grateful I was finally able to get this done before I had no choice anymore. Now I’ll be wearing compression garments for a while and have a follow up appointment again in a week.

I’m also thankful that I got some visitors today. A couple of friends stopped by with lunch, and we sat outside for a little while and caught up.

Then some other friends stopped by before dinner, and we sat on the deck, too, since it was such a gorgeous day for being outside. They also brought me a gift which made me laugh. They know me well. Skulls and flowers! And coffee! 🤩 It was a good day.