October 5, 2021

Radiation normally happens like this:

I lay on the table with my left arm up and my head tilted right and the techs line my tattoos up to red and green light markers that shine down from the ceiling. The table I lay on moves up and down and front to back. If I’m off from side to side, then they slowly pull the sheet under me while reminding me not to help. Everything is adjusted in millimeters. Once I’m lined up, I have to take a deep breath in and hold it so they can take a computer snapshot for reference. Then they leave the room. The machine arm above me moves slightly to the right and I can hear and see the screen adjusting for the beam. Soon I can hear the nurse telling me to take a deep breath and hold it, and the machine turns on. There is no light, only sound and it lasts 20-25 seconds. When the sound stops, I know I can breathe again before they tell me I can.

Then the techs come back in because they need to put a towel and “bolus” on me, which is a sheet of rubbery material that is supposed to make up for my lost breast tissue. We have to do another deep breath snapshot and sometimes tape the bolus down to make sure it doesn’t slip. If all looks well, then they leave and the machine rotates further to the right. We do two deep breath holds in this position, each shorter than the initial one. The sound changes on these. The first is higher pitched than the second. When they’re done, the machine moves over me and around way to the left. If the bolus has moved, the techs come back in and we do another adjustment. If the bolus hasn’t moved with my breathing, we do one more round here and we’re done. By this time, my arm aches and my hand is numb because through it all, I can’t move. Once, without thinking, I crossed my feet in between rounds and they had to completely readjust me.

Today, as we finished the second one on the right, the machine didn’t move. I lay still, waiting. And waiting. Finally, a tech comes in and says the sensor is acting up and she needs to move it manually. It moves in spurts. Finally, it’s in position and she leaves. We continue. I take a deep breath and hold but there is no sound. Soon they tell me I can breathe but not move. I wait. Eventually, they come back in and say the machine still isn’t working correctly and they called someone in to look at it. They ask my doctor about adding the last round to tomorrow’s treatment while the machine is being checked.

Ultimately, I’m given the option to wait for the machine to reboot or have one more round tomorrow. At that point, I said it didn’t matter, so we wait the 11 minutes for a reboot. The manager comes in to apologize and explain what’s going on. We make small talk and after another readjustment, we are ready to go. Only we don’t.

After all that, the machine wasn’t fixed, so I have to have an extra round tomorrow. I’m assuming the machine will be fixed overnight. I’m not loving the idea that my health is dependent upon this fallible machinery, but here we are. The curtain has been pulled back. Now I know it’s not magic. But you know what I’m thankful for? The device is so precise that it won’t work if it’s not right. That my techs are not only skilled, but legitimately nice. That we were almost done, so I can make it up tomorrow without issue. Fingers crossed this was the only blip I’ll have going forward.

October 4, 2021

Today my doctor gave me this because apparently getting radiation along my collarbone can create a sore throat and the sensation of a lump in the throat. If you’ve followed my blog for very long, you’ll know how not pleased I am about this. Not pleased at all. If you’ve just stumbled upon this post, then know that I am someone who can choke on her own spit. So I don’t like weird throat sensations. That being said, I’m thankful that my doctor said my throat won’t close up or anything. That’s something to hold onto.

However, I’ve decided I’m not going to worry about it. At this point I’m just going to add it to the list of crazy side effects I’ve already dealt with and lived through. And hopefully drinking this bottle of aloe vera water means I’ll barely notice it. If nothing else, it adds to my list of hydrating beverages, right?

September 27, 2021

I’ve been thinking about a friend of mine all day. We’ve known each other a long time—since the early 90’s, and she shares a birthday with my youngest. She retired a while ago, and we don’t see or talk to each other regularly anymore but we talked last night. She shared that her young grandson has cancer and that she was just diagnosed with breast cancer as well.

I want to know what the heck is going on. I mean, come on. There are too many people going through too much painful crap this year! I feel terrible for my friend and wish she didn’t have so much to deal with.

But I know this. She’s very strong and resilient. She has a no-nonsense approach to life that allows her handle issues head on, and she’s able to look on the bright side of things. She said her grandson is doing well with his treatments. The family is supportive and hopeful. And her cancer is in the very early stage, so she shouldn’t need chemo. That’s positive! Although it’s not good news, I’m thankful the prognosis is good for both of them. I’m grateful my friend reached out to me, so I can be there for her.

September 22, 2021

Well, I was right about my wrist problem. It is De Quervain’s. But I was wrong about the solution. Since it wasn’t getting better, I called my doctor who referred me to an orthopedic clinic where I went this morning. The hand and wrist specialist said that at the stage my wrist was, the splint would no longer work. He did a cortisone shot instead. All I can say is, Ouch.

The upside is that after a couple of days, the shot usually is 90% effective at relieving the symptoms and 50% effective at curing the problem. If it doesn’t cure it, the next step is surgery, so I’m really hoping for a cure. In the meantime, I’ll be thankful for pain relief.

I’m also thankful to have my first radiation appointment done. It was a little longer than it should normally be since they did a little tweaking again. Apparently I hold my breath too deeply. Go figure. At least I won’t need to worry about not being able to hold it long enough. It was fine. Plus they had to draw the radiation parameters on my skin for pictures. I never realized how often Sharpies are used in the medical field. Another go figure. One nice thing about it is that I can see where I need to apply lotion. And it’s way further under my arm than I anticipated.

So, here’s to another day of being poked and prodded but in the right direction. The countdown to Nov 4, my last treatment day, begins!

September 21, 2021

I got a call from my radiation oncologist’s office today with a last minute request to come in for X-rays this afternoon. It was the last step needed before radiation starts tomorrow. I’m scheduled from now through November 4th.

The X-rays were done in the treatment room, so I was able to get an idea of what my treatments will be like. The ceiling is designed to looks like a glass ceiling with the sky and tree branches visible. Music was playing. It was really nice. The techs and I jokes that we just needed someone to deliver margaritas.

I’m thankful I got radiation scheduled. I’m also thankful I got a glimpse of what my daily visits will look like. I think I’m ready. I have skin lotions, protein shakes, and intend to hydrate, hydrate, hydrate (my plastic surgeon’s suggestion).

September 16, 2021

I had my radiation planning session today. It involved a lot of laying down and being still. Not my best posture.

The hardest part of the hour and a half was keeping my arm raised. Even though I had it in an arm rest like in the picture below, my hand still fell asleep and my tight chest muscles burned.

Breast board image I found on Healthline.com.

Part of the process was getting CT scans while in this position that will be used by the radiation team to plan my upcoming procedures. A few times I needed to hold my breath, which will be part of my sessions. Holding my breath will help minimize the radiation effects to my heart as much as possible.

The final part for today was tattooing small black marks on my chest that will be used to position me in the same spot every session. That hurt more than I expected it to. I’m not sure how I feel about having permanent black spots on my chest, but it’s better than permanent cancer. So there’s that.

I’m thankful that things went well today, and I’m hopeful that I can start radiation next week.

September 8, 2021

I saw my plastic surgeon again today and he filled more of the tissue expander on my left side. He says he will likely stop here and wait until after radiation to do any more filling. By next Tuesday, it will have been 5 weeks since surgery, so his office will let my radiation oncologist know I’m ready.

I mentioned how sore and heavy things still seem, especially at night. I told him it feels like things are superglued to my ribs. He wasn’t surprised at my description and says he wants everything to remain in place. The heaviness and tightness, especially at night, are normal for now. His nurse also told me that it will take quite a while for everything to stop feeling sore (and weird).

While knowing I’ll be uncomfortable for many more weeks is not what I wanted to hear, at least I know it’s normal. I’m thankful for that. I’m also thankful that I was given the ok to have a glass of legit wine. Yay!

September 1, 2021

Today I got my final bandages removed. My appointment was with the nurse, but my doctor showed up anyway jokingly saying he couldn’t resist. I think he was curious about the incisions, which he claims are healing well. He also decided to add saline to the side that wasn’t fillable during surgery to start evening me out. After some discussion about upcoming radiation, he said he’d like me to come in next week as well to add a little more. Once radiation starts, we will probably stop filling until treatments are done.

It feels so much better having the bandages removed. Less pressure. However, I’m not sure I was fully prepared to seeing the incisions as they are. I was expecting something more delicate but these look angry and red. The skin is folded a bit too, which must eventually stretch out. It’s funny. Of course, the process of the surgery was explained to me ahead of time. I even did my own research. When my doctor did the markings before surgery, he told me what they meant and where the incisions would be and how the stitches would be underneath and eventually dissolve. But I didn’t ask what it would look like post surgery. Or during the fill process. Or even once it’s all done. I guess I just wanted the cancer gone and trusted that my plastic surgeon would put me back together. Now that I’m at this point, I have questions and I’ll know what to ask at my next visit.

It’s been 9 months since my cancer diagnosis. I’m thankful I’m so far along in this whole process and healing well. And I’m thankful that I trust my plastic surgeon, even though things look a bit dubious at the moment.

August 29, 2021

I slept terribly last night, meaning I barely slept. My legs bothered me. I couldn’t get into a comfortable position. My chest felt heavy. And why is it that trying to get to sleep makes it harder? Ugh.

I was hoping I could get back to work this coming week, but I think I need a little more time. My surgeons both said that 2 weeks was a minimum timeframe which is why my follow-up appointments were set for about 2 weeks post surgery. While I am definitely moving around better, I still find myself getting sore and uncomfortable by dinner time without doing much. I looked up normal recovery time for my surgery on cancer websites and most say 4-6 weeks. By Tuesday it will be 3 weeks. I’m getting close.

I’m thankful I have some flexibility with work (at least I hope I do!). I’m thankful I got to catch up with some friends today. And I’m thankful it’s almost bedtime.

August 25, 2021

Yay!! My plastic surgeon took out my drains today!

I will say that getting them removed was really something. I had two on each side, so two nurses worked together to take them out at once. After they clipped the sutures, they grabbed both and pulled in one long motion. All four at once. Patrick was watching and said each one was at least 12-18” long, and I could feel every twist as they came out. It burned but wasn’t really painful, thank goodness. Just weirdly uncomfortable.

While they took off the binding on one side, the P. Surgeon wanted to leave the other side intact for another week. Even so, he gave me the ok to shower again. BEST. DAY. EVER. Well, ok, best in a couple weeks. And I showered as soon as possible once we got back home. Because I could.

I saw my plastic surgeon in the afternoon, but I had an appointment with my general surgeon in the morning. He explained how his portion of the surgery went, giving us an anatomy lesson in the process. Did you know breast tissue typically extends up to the second rib and has to be peeled off of the chest muscle during a mastectomy? And that there is a visible difference between tissue and muscle? The upside to knowing this is that the area that showed positive margins for cancer was where the tissue and muscle met. That means my tumor was right to the edge of my breast tissue, and according to my surgeon, it wasn’t like the tissue extended into the muscle.

Now, since so much of this cancer stuff gets overwhelming and confusing and scary, I like to ask a lot of questions during my visits, sometimes repetitively, and without fear of sounding stupid. Yesterday I asked my oncologist if the only way cancer could spread is through the lymph nodes. He said yes. And then through the blood. He assured me that my breast cancer could not just move directly from my breast tissue into my muscles.

My takeaway is that there is a good chance my surgeon really did get all of the cancer, and any microscopic cells left behind should be eradicated by the upcoming radiation. I’m thankful for that. I’m also thankful that both my surgeons had the same reaction to how my healing is progressing —an almost surprised happiness. I think it’s because there was worry about adequate blood flow to one side. It was deep purple after surgery but today it’s almost bruise-free. Their reactions and explanations helped ease my mind about how things are going.

Today it’s going pretty good.