July 12, 2021

Last week, I left two messages for my surgeon’s office to see how scheduling was going. I got a call back on Friday saying they were waiting for the plastic surgeon’s office to call. Today I called the plastic surgeon’s office and was told they were waiting on pre-authorization from my insurance company. So…I called my insurance company and was told the paperwork submitted was pending because it was missing codes. Thankfully, the woman at the insurance company was helpful, and after I explained what the surgery was for, she figured out codes and said she’d push it along so I’d get an answer from them by Friday.

Then I got a call back from my surgeon’s office this afternoon saying that the plastic surgeon’s office told them that they’d be doing the reconstruction part separately instead of coordinating, which was not what was explained to me. So I called their office again, saying I was confused since delayed reconstruction was never part of the conversation. She promised to talk to my plastic surgeon and call me back, which she did. He agreed to coordinate, and if schedules didn’t line up well, then they would have to delay. Finally, I called the surgeon’s office back.

Schedules lined up on August 10. They still need to get it on the books, but I should get a confirmation within a couple of days. It’s not ideal to wait another month, but my nurse coordinator agrees that waiting for one surgery is preferable to two separate ones.

While it was a lot of back and forth, I’m thankful to finally have a date to work towards!

June 29, 2021

I mentioned yesterday that I saw my original plastic surgeon, but I realized I hadn’t explained what happened since I first saw him. A couple of months after my initial appointment, I got a call from his office saying that he was leaving the medical group and I would be referred to a different doctor. Rumor was something happened during a renegotiation of his contract. While I never heard any specifics, someone who is friends with his wife told me that he was disappointed and wanted to stay.

In the meantime, I was referred to another doctor who was fine, but not someone I was enthusiastic with. When I asked about the procedure, she didn’t offer options. She was rather adamant that the only method she would do was under the muscle implants.

Then I started hearing from nurses and other doctors that my original surgeon was working with another clinic in town, and I had the option to go back to him. Most seemed to be genuinely happy he was still around. When I pressed folks for an opinion (not really expecting a definitive one) the responses were the same. When I mentioned her name, they said she would be fine. I took that to mean that both were skilled but he was probably easier to work with.

In some respects, I was annoyed that I had to think about all this again. Not just which doctor to go with, but what procedure to do. There is not good data out there. Most searches bring up plastic surgery sites, which aren’t the most reliable, as they lean towards what the doctor prefers or is most skilled at.

So I bounced my ideas and concerns off my family and friends. Read what I could and also prayed about it. Today I let my general surgeon know that I’d be going with my original plastic surgeon, so they could work on getting surgery scheduled. Ultimately, I like that he suggested a procedure but said he would do whatever I chose because it was my decision. I’m thankful that I feel comfortable with it and things will move forward again.

June 28, 2021

Patrick and I were still rather exhausted today even after a regular night of sleep. What is it about just riding in a car that is so tiring? Although we did get out and leave by 5 am after a late evening at the wedding…I think I just answered my own question. At any rate, I’m thankful that I took today off work so that I could get everything unpacked and laundry done.

I also met with my original plastic surgeon today. He joined a different practice in town but still has rights at the hospital I’ll be going to. He answered some more questions I had and discussed his suggestion for surgery. I now have to decide if I’m going with him or the plastic surgeon I was referred to as a second choice. I need to do a bit more research on surgery options, but I am grateful to have a choice again.

January 15, 2021

Today was more difficult than I was anticipating. I had an appointment early in the morning to meet my plastic surgeon and go over reconstruction options. Although it’s not 100% necessary, I’m leaning towards a bilateral mastectomy. I really don’t want the worry that cancer could return in what I leave behind.

My plastic surgeon is nice. He specializes in this area and has his own family history of dealing with breast cancer, so he has an understanding of how overwhelming things can be. He mentioned more than once that I could call his office at any time with any question and that ultimately I was in charge of what I wanted. His explanations were thorough, his suggestions made sense, and he seems very capable.

I’m not sure what my expectations were. I expected that they may have to take photos. I guess I wasn’t expecting that they’d be taken in a room with bright lights and a backdrop, like class picture day. Standing with my hands by my sides, naked torso, turning at intervals while the female nurse photographed me wasn’t what I had imagined. I expected that the doctor would want to examine me. I may have even expected it when he took out a white eyeliner to draw on my body to show me where the incisions would be made. What pieces of me would need to disappear. When he turned me to the mirror so I could see myself as he explained what he would need to do, I didn’t expect to feel so sad. So vulnerable.

By the time we talked through the timeline, it finally sank in how long this process of being cured to being made something akin to whole again will take. Reconstruction won’t happen until all my treatments are done. Chemo will take until June. A mastectomy will follow and the recovery time is 6-8 weeks. At best, that take me to August. Radiation will follow…how quickly and for how long now will be a discussion with the radiologist next week. Originally, that was going to be many weeks. I suspect reconstruction will begin at best October, maybe November. The type of reconstruction my doctor suggested will be two-phased. If I’m lucky, I’ll start the new year with a new look.

It’s daunting and overwhelming, and honestly, I felt a bit sorry for myself when I got home. I was angry and tired and so damn disappointed again. And then you know what happened? Patrick reminded me that we’re in it together and we’ll get through it one step at a time. And then a friend sent me a funny text and made me laugh. And another friend texted saying she had left something at our front door, which contained among several things, coffee-scented room oil and bubble gum flavored lip balm, which is Ah-mazing. Then I grabbed some candy from the gift basket a friend dropped off the other day that I didn’t even tell you guys about because you would be SO JEALOUS of its awesomeness. And I realized once again how loved and supported I am and that’s all that really matters anyway. Thankfully, gratefully, I will get through this year.